Clinical research provides access for patients to promising new drugs and medical devices. It also enables access to the best available clinical care from health care professionals who are leaders in their fields.
At Clinical Trials BC, we optimize British Columbians’ involvement in clinical trials by helping to remove barriers and enhance the participant experience. By learning more about the participant perspective, we help BC research sites develop clinical trials that are more accessible, acceptable and beneficial to patients and the public. We’re also collaborating with the BC SUPPORT Unit to support patients as partners within clinical trials and to develop a patient pathway for engagement in clinical trial development and implementation.
Public Opinion Survey
Clinical Trials BC partnered with Clinical Trials Ontario (CTO) to conduct a public opinion survey on Awareness and Perceptions of Canadians on the Benefits and Risks of Clinical Trials (read the news release from 2016). The 2015 survey asked 1,602 Ontario and British Columbia residents about their understanding of, and willingness to participate, in clinical trials.
Read an open-access article about the survey here, published in Sage Journals.
It Starts With Me
Did you know that healthy people and people with medical conditions can help in the development of new treatments such as medications, surgical procedures and medical devices? By participating in a clinical trial (a type of clinical research) you may be able to help yourself, those you love, and even people you don’t know.
It Starts With Me is a project created in collaboration with Network of Networks (N2) that’s a useful educational resource for potential clinical trial participants. The video above, and the project website, shows the far-reaching benefits of clinical trials when patients and public participate in them.
Researchers: This video and an accompanying toolkit is available to N2 Members, with permission, for participant recruitment. To use this video as part of your recruitment strategy, please contact N2 for more information.
Canadian Clinical Research Participation Survey
The Canadian Clinical Research Participation Survey is a national initiative by Clinical Trials BC to engage and learn from patients and the public about their clinical trial experience, especially people who have declined to participate in a clinical study. Any Canadian who was ever invited to participate or enroll their child in a clinical trial was eligible. National recruitment activities were funded by the Canadian Clinical Trials Coordinating Centre (CCTCC) and in conducted in partnership with N2 Canada.
Survey enrollment closed April 30, 2017 with 1,000 responses in both French and English. Data analysis was completed in March 2018. Knowledge translation and results dissemination is ongoing provincially and nationally through to June 2019.
Recent activities include:
- May 2018: A workshop co-hosted with Island Health. Volunteers who have either participated in a clinical trial or declined to participate were invited to help interpret survey results from their perspective. Two previous clinical research participants also spoke on their experience.
- March 2018: A survey results dialogue and workshop for clinical research personnel, co-hosted with Island Health Research and Capacity Building.
- February 2018: Consultations with BC Health Research Connection Project and Vancouver Coastal Health Research Institute.
We welcome requests for collaboration on further workshops or Knowledge Translation activities specific to site needs.
BC Health Research Connection Project
As part of its work to enhance British Columbians’ participation in clinical trials by increasing awareness of, and access to, clinical trial opportunities, Clinical Trials BC is working in collaboration with the BC Health Research Connection Project.
The BC Health Research Connection Project aims to connect patients and the public to health research opportunities. The project involves creating an online platform that will help health researchers find potential patient partners and research participants.